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Edition 2014

 

Program

DAY 1 – Wednesday September 24th

08:00-09:00 Registration
09:00-09:30 Welcome
Jan-Eric Litton (Director General BBMRI-ERIC, Austria)
Gert-Jan van Ommen (Leiden University Medical Center, The Netherlands)
Anu Jalanko (BBMRI.fi, National Institute for Health and Welfare, Finland)
Marja Makarow (Vice President, The Academy of Finland, Finland)
09:30-10:00 Coffee

10:00-12:00

KEYNOTE SESSION 1
International Biobanking Summit (IBS) III:
  Implementing the Framework for Responsible Sharing of Genomic and Health-Related Data

10:00-10:10 Welcome and Introduction of Speakers
Laura Rodriguez (National Human Genome Research Institute, USA)
10:10-10:25 Development and Content of the Framework
Bartha Maria Knoppers (McGill University, Canada)
10:25-10:55 Scenario 1: Pediatric Research (Rare Diseases)
Discussion leader: Heidi Howard (Uppsala University, Sweden)
10:55-11:25 Scenario 2: Aging Research (ApoE)
Discussion leader: Sven van der Lee (Erasmus University Medical Center Rotterdam, the Netherlands)
11:25-11:50 Scenario 3: Research in low- and middle income countries (Genomic Research in Africa)
Discussion leader: Jantina de Vries (University of Cape Town, South Africa)
11:50-12:00 Next Steps
Jennifer Harris (Norwegian Institute of Public Health, Norway)
12:00-12:30 Introduction to The Route
12:30-14:00 The Route and lunch
14:00-15:00   Ethics & Legal Science Café: Results from Research as Part of Healthcare
Chair: Helena Kääriäinen (National Institute for Health and Welfare, Finland)
14:00-14:10   What Results, When, Who Reports to Whom?
Tarja Laitinen (Turku University Hospital, Finland)
14:10-14:20   Case report: Long QT Mutations in a Population Cohort
Ari Haukkala (University of Helsinki, Finland)
14:20-14:30 Right not to Know versus Duty to Care
Matts Hansson (University of Uppsala, Sweden)
14:30-15:00 Discussion

15:00-16:00

KEYNOTE SESSION 2

Chair: Eero Vuorio (Biocenter Finland, University of Helsinki, Finland)
15:00-15:45   Hospital Biobanks - Use of Specimens and Clinical Information in Disease Phenotyping
Olli Carpén (University of Turku, Finland)
15:45-16:00 Discussion
16:00-17:00 Posters, the Route and wine.
19:00 - Dinner: Vanha Ylioppilastalo
 

DAY 2 – Thursday September 25th

09:00-10:00 The Route and coffee

10:00-11:00

KEYNOTE SESSION 3

Chair: Markus Perola (National Institute for Health and Welfare, Finland)
10:00-10:45   Potential of Biobanking in Translational Medicine
Arndt Schmitz (Bayer Pharma AG, Germany)
10:45-11:00 Discussion

11:00-12:30

PARALLEL SESSIONS

 
  IDEA LAB 1

Individual Data Guiding the Transformation in Health Care
Moderator: Tarja Laitinen (University of Turku, Finland)

Quantified self & Biobanks
Presenter: Teemu Arina (Dicole Ltd., Finland)

  Health Data Cooperatives: from digital feudalism to digital self-determination
Presenter: Effy Vayena (Institute for Molecular Systems Biology, Switzerland)

Biobanks as Part of Patient Care
Presenter: Michael Hummel (University Medicine Berlin, Germany)

Informed Consent to Cover Unknown Future
Presenter: Helena Kääriäinen (National Institute for Health and Welfare, Finland)
  IDEA LAB 2

Public-Private-Partnerships
Moderator: Gert-Jan van Ommen (Leiden University Medical Center, the Netherlands)

Business Models for Biobanking
Presenter: Pekka Kahri (Tekes, Finland)

  A Model for Effective Industry-Biobank Collaboration: A Publicly Owned, Commercial Run, Biobank Company with a National Mandate
Presenter: Ove Solesvik (Lifandis AS, Norway)

  Quality, the Driving Force for Success in Biobanking Public Private Partnership. We owe it to Patients!
Presenter: Erik Tambuyzer (Centrum for Medical Innovation, Belgium)

  Expert Centres for Improved Access to Research Infrastructures
Presenter: Kurt Zatloukal (Medical University of Graz, Austria)
EDUCATIONAL SESSION

11:00-12:30
Genetic data / Technologies / Quality


11:00-11:20
  SISu-project in Action: Using Near Complete Genomic Variation from Tens of Thousands of Finns for Discovery and Translation.
Samuli Ripatti (Hjelt Institute and Institute for Molecular Medicine Finland, Finland)

11:20-11:40
  BiobankCloud: A Platform as a Service for the Storage and Analysis of NGS Data
Jim Dowling (Royal Institute of Technology, Sweden)

11:40-12:00
  Recent Developments in Biobank Technologies
Kristian Hveem (Norwegian University of Science and Technology, Norway)

12:00-12:20
  Quality Biobanking Operations and Practices - Connecting the Biobank with Downstream Applications
Marianne Henderson (NIH, NCI, USA)

12:20-12:30
Discussion
12:30-13:00
Meet the experts 1
Meet the experts 2
Meet the experts 3
12:30-14:15 The Route and lunch
14:15-15:00 Ethics & Legal Science Café: Public-Private-Partnership
Chair: Sirpa Soini (National Institute for Health and Welfare, Finland)
14:15-14:25   A Roadmap for Achieving Benefit-sharing
Effy Vayena (Institute for Molecular Systems Biology, Switzerland)
14:25-14:35 Life at stake - Why are Health Innovations Everybody's Business?
Timo Ahopelto (Lifeline Ventures, Finland)
14:35-15:00 Discussion
15:00-15:30 The Route and coffee

15:30-17:00

KEYNOTE SESSION 4

Chair: Jan-Eric Litton (Director General BBMRI-ERIC, Austria)
15:30-16:15   Biobanks and Personalized Medicine: The FHRB Biobank Concept
Kimmo Porkka (University of Helsinki, Finland)
16:15-16:30 Discussion
16:30-17:00 Conclusions & Next Steps
Jan-Eric Litton (Director General BBMRI-ERIC, Austria)
Marialuisa Lavitrano (BBMRI.it, Milano-Bicocca University, Italy)

Announcing the winner of the poster competition