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Program 21 November

Download the program as pdf

08:00 – 09:00 Registration open
09:00 – 09:30 Welcome by Jan-Eric Litton, Director BBMRI-SE/Karolinska Institute
and Gert-Jan van Ommen, Director BBMRI-NL
09:30 – 09:45 Opening HandsOn: Biobanks 2013 by Marjolein Kriek
09:45 – 10:30

Keynote 1 – Biobanks:ethics & trust (future issues)

Speaker: Uta Francke, Stanford school of Medicine, "SNPs and surveys: Participant-driven research with self-reported data"

10:30 – 11:00 Coffee & tea at The Route
11:00 – 12:30

Parallel sessions

Idea Labs: what's the big idea 

During the two-day conference, you will be able to attend three Idea Labs. Idea Labs consist of an introduction to a theme, followed by four sub-sessions during which you follow up and discuss the sub-theme of your choice with an expert and the other members of your group. Nothing is decided except the general outline; it all depends on your input!

Idea Lab 1 Best practices for multi-omics biomarker discoveries
Convenor: Peter-Bram ‘t Hoen, Geuvadis
Andy Brooks, EOHSI
Ann-Christine Syvänen, Uppsala University
Gabi Kastenmüller, HelmholtzZentrum München
Yuri van der Burgt, LUMC

 

Idea Lab 2 Standardizing the changing world, share information in the cloud using standard protocols
Convenor: Jan-Eric Litton, Director BBMRI-SE/Karolinska Institute
Jim Dowling, KTH, Royal Institute of technology
Roxana Merino Martinez, BBMRI.se
Jane Reichel, University of Uppsala
Linda Mook, UMCG

 

Idea Lab 3 Patient input in biobank and patient registries
Convenor: Cees Smit, VSOP/EGAN
Peter Kapitein, Alpe d'Huzes, Inspire2Life, Sage Bionetworks
Kay Parkinson, Alström Syndrome UK
Vincent Gulmans, NCFS ‎
Filippo Franchini, A.I.S.EA
Anna Kole, Eurordis
Pauline McCormack, Newcastle University

 

Educational session

Sample & data analysis
Speakers:

David Porteous, Generation Scotland
Nasrin Perskvist, National Cytology Biobank Sweden
Ele Zeggini, Wellcome Trust Sanger Institute

12:30 – 13:00

Introduction to The Route (plenary), opening Route by Jeannette Ridder

13:00 – 16:00 The Route & lunch to go

 

  • Exhibition
  • 13.00 – 16.00 Meet the Experts
  • 13.00 – 16.00 Poster sessions
  • 13.30 -14.15: Ethics Café HandsOn HeLa: How To Treat Her Right?, chair: Jasper Bovenberg
    • Musical Tribute to HeLa (I) by Joancy & Orville Breeveld
    • Introduction by Jasper Bovenberg, (Legal Pathways)
    • Sequencing the HeLa genome by Raeka Aiyar (EMBL Heidelberg)
    • Can we address "HeLa" consent issues through the PGP Open Consent? by Jeantine Lunshof (Harvard Medical School)
    • Can we address  "Hela" feedback issues through the MyBiobank App? by Gonneke Willemsen (Free University Amsterdam)
    • Discussion by Cafe guests
    • Musical Tribute to HeLa (II) by Joancy & Orville Breeveld
  • 14.00 -15.30 CSI The Hague: solve a murder mystery at the DNA Lab!
16:00 – 17:30

Parallel sessions

 

Idea Labs: what's the big idea 

Idea Lab 1 Best practices for multi-omics biomarker discoveries
Convenor: Peter-Bram ‘t Hoen, Geuvadis
Andy Brooks, EOHSI
Ann-Christine Syvänen, Uppsala University
Gabi Kastenmüller, HelmholtzZentrum München
Yuri van der Burgt, LUMC

 

Idea Lab 2 Standardizing the changing world, share information in the cloud using standard protocols
Convenor: Jan-Eric Litton, Director BBMRI-SE/Karolinska Institute
Jim Dowling, KTH, Royal Institute of technology
Roxana Merino Martinez, BBMRI.se
Jane Reichel, University of Uppsala
Linda Mook, UMCG

 

Idea Lab 3 Patient input in biobank and patient registries
Convenor: Cees Smit, VSOP/EGAN
Peter Kapitein, Alpe d'Huzes, Inspire2Life, Sage Bionetworks
Kay Parkinson, Alström Syndrome UK
Vincent Gulmans, NCFS ‎
Filippo Franchini, A.I.S.EA
Anna Kole, Eurordis
Pauline McCormack, Newcastle University

 

Educational session - starts at 15.30 !

Biobanking practice & pre analytics
BioSHaRE

Symposium Chairs: Bruce Wolffenbuttel and Markus Perola
This symposium describes tools developed in BioSHaRE-EU to achieve Data Integration across multiple studies and countries. We use the BioSHaRE Healthy Obese Project as a case study to illustrate the challenges encountered and solutions developed to conduct research across participating biobanks. It focuses on four critical components of data integration:  

 

1.    Data Harmonization, Vincent Ferretti
Challenges related to the harmonization and integration of data across studies will be described and solutions to overcome these challenges proposed. These solutions include usage of harmonization best practices and software applications like OPAL and Mica, which can be customized to create a complete data management and integration system across biobanks.

 

2.    Data Analysis using DataSHIELD, Paul Burton
Data analysis is accomplished using DataSHIELD which is a tool being developed in BioSHaRE. It allows co-analysis of the individual-level data without physically sharing the data and thereby circumvents many of the ethical and legal challenges that can impede data sharing in large scale collaborations. Our experiences with DataSHIELD will be briefly presented.  

 

3.    Data Governance, Bartha Maria Knoppers and Madeleine Murtagh
This session will present ELSI policy interoperability tools and summarize the issues encountered with data access and ethical committees surrounding the use of the biobank data in the BioSHaRE Healthy Obese Project.It will include a short discussion on future BioSHaRE governance which will help to inform the BioSHaRE Code of Conduct (under preparation).

 

4.    Additional Capabilities, Anthony Brookes and Morris Swertz
Biobanking science includes data handling needs that go beyond those currently being explored in the Healthy Obese project, and BioSHaRE is addressing a number of these. The scope and context of this work, along with some powerful emerging tools, will be presented.

 

17:30 End of day one
18:00 – 24:00 Dinner & Party at miniature park Madurodam (incl visit to the theme park)

 

Program 22 November

Download the program as pdf

08:30 – 09:00 Registration open
09:00 – 10:30

Parallel sessions

 

Idea Labs: what's the big idea

During the two-day conference, you will be able to attend three Idea Labs. Idea Labs consist of an introduction to a theme, followed by four sub-sessions during which you follow up and discuss the sub-theme of your choice with an expert and the other members of your group. Nothing is decided except the general outline; it all depends on your input!

 

Idea Lab 1 Best practices for multi-omics biomarker discoveries
Convenor: Peter-Bram ‘t Hoen, Geuvadis
Andy Brooks, EOHSI
Ann-Christine Syvänen, Uppsala University
Gabi Kastenmüller, HelmholtzZentrum München
Yuri van der Burgt, LUMC

 

Idea Lab 2 Standardizing the changing world, share information in the cloud using standard protocols
Convenor: Jan-Eric Litton, Director BBMRI-SE/Karonlinska Institute
Jim Dowling, KTH, Royal Institute of technology
Roxana Merino Martinez, BBMRI.se
Jane Reichel, University of Uppsala
Linda Mook, UMCG

 

Idea Lab 3 Patient input in biobank and patient registries
Convenor: Cees Smit, VSOP/EGAN
Kay Parkinson, Alström Syndrome UK
Jacquelien Noordhoek, NCFS
Filippo Franchini, A.I.S.EA
Anna Kole, Eurordis
Pauline McCormack, Newcastle University

 

Educational session

Dissemination: Publishing
Convenor: Jan Velterop, Aqknowledge
Amye Kenall, BioMed Central
Robert Hewitt, ESBB

10:30 – 11:00 Coffee & tea at The Route
11:00 – 13:30

The Route & Lunch to go

  • Exhibition
  • 11.00- 13.30 Meet the Experts
  • 11.00- 13.30 Poster sessions
  • 11.00- 12.30 CSI The Hague: solve a murder mystery at the DNA Lab!
  • 12.00 -12.45 Ethics Café ft. Ellen Clayton, Vanderbilt Law School and Annelien Bredenoord, UMCU
13:30 – 14:15

Keynote 2 – Economics and Biobanks (future issues)
Speaker: Stephen Birch, McMaster University "Making sure the dollars make sense?"

14:15 – 15:00

Keynote 3 – Biobanks, drug development & clinical practice (future issues)
Speaker: Henk-Jan Guchelaar, LUMC, "Personalized medicine: where are we, really?"

15:00 – 15:30

Coffee & tea

15:30 – 16:30

Plenary summary of Idea Labs

16:30 – 16:45

Ceremony Best Poster award

16:45 – 17:30

Closing debate: Privacy vs. Progress
Jeantine Lunshof, Harvard Medical School
Bartha Knoppers, Mc Gill University Canada
Anthony Brookes, University of Leicester, UK
Cees Smit, VSOP/EGAN
Annelien Bredenoord, UMCU
Uta Francke, Stanford School of Medicine
and GertJan van Ommen, BBMRI-NL, convenor

17:30 – 18:30 Drinks & Bites